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2016-05-19 03:56 am

Dis ability: The Old Woman's Toilet Troubles

My mother came down from Sudbury

"No spring chicken" teaches lessons in accessibility

Image: Photo of Geoffrey Dow with Benita Hart, his mother

My mother is a cripple (her word, not mine). She's 83 years old, has two bionic knees and one of those is ... loose. Falling apart, she says, and the surgeons in Sudbury (all of whom work out of the same practice, so no shopping around for a second opinion unless you're willing to shop for one in Toronto or Ottawa) say she's too old for a replacement.

Despite that mechanical failure and a spine giving way to osteoporosis, and despite some problems with short-term memory (not, so far as I can tell, early-stage Alzheimer's or some other kind of dementia; but disconcerting nevertheless), her doctor tells her she's mostly in very good health and has every chance of seeing her 95th birthday.

She is, further, having the time of her life as a born-again celebrity of sorts (if only in Northern Ontario) and has made of her late uncle Jules' saying, "life is good", her own touchstone.

Image: Banner from CBC Sudbury's feature page for Benita Hart and 'Growing Old Ungracefully'.

Last week, a friend was driving down to Ottawa and wondered if she would care to accompany him. Travelling isn't as easy for her as it used to be, but she said yes, and so arrived in Ottawa last Thursday. And I saw her on Sunday.

* * *

A lot of people find my relationship with my mother a little strange. We actually like each quite a lot, as people as well as as mother and son, yet we probably don't see each other as often as once a year, we seldom email and, unless she's having computer issues (I have her running Linux Mint, so I'm her go-to guy for support when something's not working), we probably only talk on the phone every three or four months.

But those conversations usually last between two and four hours, and include healthy exchanges of politics and philosophy along with a a lot of laughter (and a little gossip), so I'm not bothered. And neither is she. After all, we both have lives.

Anyway.

She had asked about staying with me and Raven, but I had to remind her that inhabit the top two floors of a three-story town house. Though she's taken up distance walking through the good offices of a physiotherapist and a walker, her knees aren't up to a flight of stairs every time she wants to use the bathroom.

So, as I said, she stayed with a friend. And meanwhile, I had a friend of mine come into town on Thursday, whom I hadn't seen in 22 years. Since Sonia was only passing through town, I invited her to dinner and she stayed the night on our couch after we caught up and reminisced as old friends long out of touch will do. (It wasn't only the passing of time that was shocking about our reunion; it was also how many memories we did not share in common. Or, as Sonia put it, how lousy my memory was. Somehow, over the years, I had come to think of her as some sort of weird, near-celibate girl who was forever single; she had to reminded me that I'd met at least two of her boy-friends. But onwards. This entry is about Mom, and the lesson she taught me about accessibility issues.

You weren't expect a lesson, were you Gentle Reader?

I had work on Friday and Saturday, so it was only on Sunday afternoon, after my soccer game, that I actually saw me old mum in the flesh.

Image: Photo of Geoffrey Dow with Benita Hart, his mother, and her walker.

Cognizant of how difficult it can be for cripples the handicapped to get in and out of small cars, I'd foregone my usual compact in favour of renting a minivan, and it was in that vehicle that my mum, Raven and I set out for dinner, on the way detouring past our home, the inside of which my mother will never set foot.

We wanted to go to Saffron, a Persian eatery which — to our surprise if not quite shock — seems to no longer exist. We ended up at the Golden India restaurant, a Bangladeshi-style Indian restaurant on McArthur. Raven and I have been a couple of times before and found it far and away the best Indian food we've had in Ottawa. The dishes are subtly flavourful, even when "extremely" hot. (I ordered the brilliant Bangalore Pal and didn't regret a drop of the sweat I lost over it.)

But the good food and conversation were marred by a post-prandial occurrence.

Though the bathrooms were on the main floor, it turned out they were not, quite, accessible. The toilet, my mum said, was extremely low. There were no grab-bars. She very nearly had to call for help, just to get up off the shitter.

The things the able-bodied don't think about! (And despite my problems with arthritis, able-bodied is still how I think of myself!)

The restaurant's hostess apologized when my mother complained, but it was pretty pro forma. "No one else has ever complained," she said.

"Most people probably just don't come back," was my mother's response. And no doubt, she's right. Unlike my mother, most people don't want to make a fuss. Hell, my mother doesn't "want" to make a fuss either, but she (quite rightly) thinks that fusses sometimes need to be made.

Anyway, the incident left me contemplating the place we'd tried to take her the last time she was in town, the sometimes sublime Chahaya Malaysia. A low-key, mom-and-pop style restaurant serving brilliant food, it is a also one of those places whose bathrooms are in the basement. Tough shit for the handicapped. And a good thing it was closed the time we tried to introduce my mum to its brilliant food.

But the moral of the story is, even when we think we're aware of issues having to do with social justice, it's really damned easy to miss the things that don't affect us personally in some way. If you've ever wondered why the toilets in old folks' homes are so high, or the seats have risers, now you know: when the knees are going, standing up is no easy thing.

Thanks, mum. I hope you had a good drive back on Monday. Presumably, if something went wrong, one of my brothers would have called by now to let me know.

ed_rex: (Default)
2015-02-28 12:21 pm

It goes so fast ...

"I'm really a very lucky person." — Benita Hart

My sainted mother says she's a very lucky person
My sainted mother, Benita Hart, is growing old ungracefully.

There's no getting around it: my mother is dying. Not of any specific disease, but of that monstrous universal, life.

As she puts it, "my spine is crumbling" and her new(er) artificial knee rattles around, causing her intense pain on very little activity. She isn't quite housebound yet, but it's a near thing. She's basically given up on cooking because standing at the stove and bending or reaching for things in the cupboards hurts.

I rather suspect that, on some level, pretty much everything hurts her, at least a little.

And yet, "I'll consider myself lucky," she said to me the other day when I was up to Sudbury for a visit, "if I have another five good — productive — years left. Really lucky if I get ten."

And yet, even if she doesn't get those five years beyond her current 81 — if she died tomorrow — I think it would be safe to say that she died happy.

My first full day in Sudbury, Tuesday, I took her out to run some errands. Well, two. A stop at a medical supply store to return one assistive device and to purchase another — some sort of portable chair-seat tilter to help the infirm stand up and a long bench to assist in getting in and out of the bath-tub, respectively. Then off to the grocery store, which (for her) meant getting out of the car right at the entrance, hobbling inside and taking a seat on a motorized shopping cart I was pleasantly surprised to see are provided for the handicapped customers.

And then to home, that was it. But the next day, she was forced to spend almost entirely in bed. She'd woken with her knee seized up and needing powerful pain-killers for the rest of the day. (On the plus side, I was gratified that she marathoned the excellent Sally Wainright mini-series, Happy Valley, despite that programs bleak and sometimes brutal content.)

Every time I see her, she's smaller and more fragile and this trip made that which I've understood intellectually for a long time viscerally clear: this visit could easily turn out to be my last visit with her; the next email or phone call could be it.

And yet, this terminal stage of her life, with its pain, loss of energy and focus, sees my mother happier than I think I have ever known her to be.

Although many (perhaps most) of her old friends left Sudbury over a relatively short time, she has managed to cultivate a new (and mostly younger) group of friends, including a special friendship with a much younger man (well, he's in his early 60s, I think) that isn't quite romantic but shares a lot of characteristics of a romance. He is also the man who drove her to Ottawa to visit Raven and I last year). And a renewed sense of professional purpose through her weekly gig on CBC Radio, which brings in welcome money and certain amount of local celebrity, which she is enjoying every bit as much as she ought to.

She isn't in denial about death's proximity, nor is the old atheist scared of it (No heroic measures! she says, and she means it), but she plans to keep on living just as long as there is joy to found in it. When the pain or the disability comes to outweigh the joy, then, she says, she will be happy to let go.

At the risk of sounding sappy, me old mum's attitude towards life (and death) is frankly inspiring. (And the fact that 81 is only 31 years away from where I am now is frankly sobering. It's been nearly a month since I turned 50 and those 24 days went awfully god damned fast. That's sobering, too.)

Speaking of my birthday, I'll leave you with a brief video Raven took after we returned from birthday weekend of skating and snow-shoeing in Montebello, Quebec, at left.